Patients Participate! project Archive

  • Citizen Science briefing paper available in print.

    Citizen Science briefing paper available in print.

    Posted on 12 November 2012 by Monica Duke | From Patients Participate
    Last week I received my supply of printed copies of the Digital Curation Centre (DCC) Briefing Paper on Citizen Science, produced by the Patients Participate! project. Order your copies through the DCC by emailing info@dcc.ac.uk or print off your own u...

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  • Citizen Science briefing paper published.

    Citizen Science briefing paper published.

    Posted on 23 October 2012 by Monica Duke | From Patients Participate
    The briefing paper from the Patients Participate! project has now been published on the Digital Curation Centre website as part of their briefing paper series. The Citizen Science briefing paper provides an introduction to citizen science, presents ben...

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  • Introducing the partners: AMRC

    Introducing the partners: AMRC

    Posted on 9 October 2012 by Monica Duke | From Patients Participate
    The Association of Medical Research Charities (AMRC) and our 127 member charities provide a direct link to the broader citizen-patient community. AMRC member charities funded over £1 billion for research in 2009/10 – carried out mostly in the univer...

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  • Invitation to comment

    Invitation to comment

    Posted on 3 July 2012 by Monica Duke | From Patients Participate
    The Patients Participate! project has released two deliverables for open community review. The first is a guide to writing Lay Summaries, and forms part of the DCC series of How To guides, pitched at an intermediate level, offering practical advice. We...

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  • Scenarios for writing lay summaries

    Scenarios for writing lay summaries

    Posted on 8 August 2011 by Monica Duke | From Patients Participate
    In preparation for the workshop, the project constructed a number of scenarios to help think through examples of how web-based, biomedical information resources, technologies and communities could support translation of emerging research findings into ...

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  • Presentations from the workshop.

    Presentations from the workshop.

    Posted on 1 July 2011 by Monica Duke | From Patients Participate
    The presentations from the workshop are now available from slideshare. These are in addition to the recording of Liz Lyon opening the event. Crowdsourcing Lay Summaries: Bridging the Gap in Health Research by Liz Lyon Accessing Biomedical and Health Information by Lee-Ann Coleman .prezi-player { width: 550px; } .prezi-player-links { text-align: center; } JISCPP on [...]

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  • Workshop Speakers

    Workshop Speakers

    Posted on 24 June 2011 by Monica Duke | From Patients Participate
    At the workshop I managed to record the welcome and introduction to the project by Liz Lyon using a Flip camera, and this is now available from vimeo. Warning: there is flash photography which can be seen in the recording. Liz Lyon opening the Patients Participate! Workshop, Jun 2011 from UKOLN on Vimeo. The Biographies for [...]

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  • Introducing the partners: The British Library

    Introducing the partners: The British Library

    Posted on 30 March 2011 by Monica Duke | From Patients Participate
    The stakeholders for Patients Participate! are spread across different communities: patients, charities, funders of research, researchers and policy makers (among others). The partnership that has been put together to carry out the project reflects the diverse interests that are represented in this project. Although all the organisations involved are household names in their own community, [...]

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