From Patients Participate Archive

  • Concluding post

    Concluding post

    As part of the process of wrapping up projects, this post sums up some of the outputs of the Patients Participate! project which ran during 2011-2012, and was funded by JISC.  Further information about the project and partners can be found in the link...

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  • Citizen Science briefing paper available in print.

    Citizen Science briefing paper available in print.

    Last week I received my supply of printed copies of the Digital Curation Centre (DCC) Briefing Paper on Citizen Science, produced by the Patients Participate! project. Order your copies through the DCC by emailing or print off your own u...

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  • Citizen Science briefing paper published.

    Citizen Science briefing paper published.

    The briefing paper from the Patients Participate! project has now been published on the Digital Curation Centre website as part of their briefing paper series. The Citizen Science briefing paper provides an introduction to citizen science, presents ben...

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  • Citizen Science Platforms

    Citizen Science Platforms

    This post gives a brief overview of a selection of systems that are used to support citizen science or crowd sourcing activities.  The examples are selected to illustrate a range of activities and systems and provide an idea of the functionality suppo...

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  • Introducing the partners: AMRC

    Introducing the partners: AMRC

    The Association of Medical Research Charities (AMRC) and our 127 member charities provide a direct link to the broader citizen-patient community. AMRC member charities funded over £1 billion for research in 2009/10 – carried out mostly in the univer...

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  • Invitation to comment

    Invitation to comment

    The Patients Participate! project has released two deliverables for open community review. The first is a guide to writing Lay Summaries, and forms part of the DCC series of How To guides, pitched at an intermediate level, offering practical advice. We...

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  • 6th Bloomsbury Conference

    6th Bloomsbury Conference

    Tomorrow the Patients Participate! project will be speaking at the 6th Bloomsbury Conference which has the theme of Scholarly outreach, impact and outcomes. There is a wide-ranging programme from discussions of open access, persepectives on impact and ...

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  • Open Research Reports

    Open Research Reports

    I’ve just heard about the Open Research Reports initiative, an idea to make disease research as openly accessible as possible to the people that really need it. Open Research Reports aim to pull together the corpus of open access literature on a ...

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  • Scenarios for writing lay summaries

    Scenarios for writing lay summaries

    In preparation for the workshop, the project constructed a number of scenarios to help think through examples of how web-based, biomedical information resources, technologies and communities could support translation of emerging research findings into ...

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  • The project

    The project

    The project with the closest idea to that being investigated in Patients Participate! that we have identified so far is the site. It is a general site run on a wiki platform, that invites summaries of academic articles to make them more acc...

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